News Story

This story was brought to my attention by another family with EHK.

It really explains EHK in terms that everyone can understand.

She's on the move!

Well sort of. haha. Genevieve has started to roll from her belly to her back, successfully. Which makes physical therapy exercises a pain in the butt! The second you get her to her belly to do tummy time she wants to roll over! Little stinker.

She had an Xray done last week because they were afraid she had hip dysplasia... but we got the call yesterday and everything looks great. we just have a stubborn little girl who doesnt like to lay her legs straight lol.

She is continuing to make great strides with physical therapy. she LOVES tummy time and screams when you flip her back over, even if she's fussing. She is sitting up almost by herself... she'll be doing it in no time. I have confidence. She also loves to sit up. She gets super excited.

I also cannot believe how much she talks. talk talk talk. that's all she does! It's adorable.

She's also becoming shy. She just loves to cuddle when I'm holding her and we are around new people (or just people in general). She cuddles her cute little face as close to my chest as possible and doesnt want to look at people, and hangs on for dear life.

So I am a very proud mama

The improvement Genevieve has made in the last week blows me away. She didnt have physical therapy this week because her PT was out of town... so we've been working very hard on her exercises. Man oh man, she's doing great. I can actually hold her to my chest with one hand and not fear her falling backwards because she cant hold her head. She will do tummy more than once a day without fussing. She actually will lift her head and look around and move her arms and put them back under chest. She will do tummy time both with a boppy and without and have just as much improvement both ways. She pulls on your hands now when you pull on her arms to pull her up to sit up. Where before you felt horrible because you were simply pulling on her arms and she couldnt fight you back about it. She can almost sit up all on her own. She will sit in her jumperoo and hold her head up and look at toys and try to play, where before she would be unhappy and rest her head on the side because she couldnt hold it. All this improvement in the last week. I am so incredibly proud of her.






Viv had a check up on Friday.. just a quick one to see how her reflux meds are working. Things look great. She is up to 15 pounds 1.5 ounces!! She's getting so big! :) Her pediatrician is a little concerned about her right hip. Therapy seems to only be correcting one of them, so if it's still a concern at her 6 month check up in August, we are going to schedule an ultrasound to be done on her hip to just check things out. With her improvement in the last week, I doubt it will be needed.

Oh and we started oatmeal! She's still iffy on it though haha.




and she's a thumb sucker now!