So her skin looks alot better today, just two days after her breakout.

After quite a few phone calls, and calls to the dermatology office by our pediatrician, we finally have an appt with a new derm who has seen EHK before. Our appointment is for March 31st, so we are crossing our fingers to be told better news about how to care for her skin.


Just wanted to share that picture. she has alot of hair on the back of her head, and is practically bald on top!!! i wish she had hair like this all over her head.